“Work will continue within the working group framework. This is critically essential, ensuring that we can best accommodate and protect the interests of children and patients, not only regarding medications but in all other areas as well,” the Minister of Health of Georgia, Mikheil Sarjveladze, stated during a briefing following a meeting with the parents of children with Duchenne muscular dystrophy.

Sarjveladze also extended his personal thanks to the parents for their constructive engagement throughout the process.

“I wish to join in expressing gratitude for the constructive approach shown by the parents. This was truly vital in reaching the decisions we have reached today, and it is precisely the kind of collaborative spirit that is needed going forward. I would also like to thank the Prime Minister for his personal involvement. We have been in consultation on these matters for quite some time, and it was of great importance that the process has been brought to where it stands today.

Work will continue in the working group format. This is critically important and necessary to have the fullest possible capacity to meet and protect the best interests of the children and patients concerned, not only in the area of medications, but across every other area as well. Parents and patients will be the first to be informed of any new developments. Naturally, the wider public will also have full access to all relevant information,” said Sarjveladze.

Earlier, Prime Minister Irakli Kobakhidze announced, following the meeting with the parents of children with Duchenne muscular dystrophy, that a working group would be established with the participation of the Ministry of Health and the parents, tasked with actively addressing the provision of specific medications for children affected by the condition.